“Suck it up butter cup!” This Saturday, instead of the typical late morning removal from the comfort of your cozy bed, get out and get some exercise. Liliana Pickens, President of the Lake Nona Run Club, and Dr. Lauren Hodges, founder and president of the Lake Nona Boot Camp are holding the First Annual Lake Nona Boot Camp Games. Not only will you get fresh air, good exercise, healthy competition, and an opportunity to hang with some fellow Nonahood residents, but you will be helping out a good cause. All proceeds will go to the Evans Syndrome Foundation.
DON’T KNOW WHAT EVANS SYNDROME IS? THAT’S THE PROBLEM! Evans Syndrome is a rare autoimmune, chronic disorder which can affect two or three blood lines. The disease has periods of remission and periods of exacerbation, and there is no known cure. Current treatment is on a trial and error basis. Because of a lack of overall awareness, there is a lack of a research, therefore extremely difficult to find a cure and improved ways to diagnose Evans Syndrome.
After successfully founding and operating the Lake Nona Half Marathon that raised tens of thousands of dollars for other Nonahood charities, Liliana now focuses on this cause that impacts her life everyday. Her oldest son, Ricardo “Ric” has Evans Syndrome. Liliana and her family know first hand the difficulties of having a family member with a disease that almost no one knows about.
Please come join Nonahood News and many other community members at the Spring of Life Church off of Moss Park Road, this Saturday (4/16) in an effort to provide you with some exercise, but most importantly awareness of Evans Syndrome.